Hey everyone!
Scott has been home since Friday evening (but boy what hell discharge
and the traffic on the way home was!!) He's since been happy in his
own bed and being waited on hand and foot. His first meal request was
pizza, and our amazing friend Scott (Hayward) came over and replaced
our bedroom air conditioner that night so he would be immediately
comfortable. He's getting around on his own and although he spends
most of his time upstairs resting in bed, he gets up and about and he
is remarkably strong considering what he just went through. I just
made him a Shepherd's Pie and he's making his way downstairs to enjoy
a home cooked meal now that his appetite is finally (slowly) coming
back.
On Sunday afternoon, Joyce (Scotty's Mom) and husband came for a visit
with Aunt Pat & Uncle Dave. It was a nice visit and Scott had Joyce
shave his head, and he finally got to shave his beard (he was asked in
the hospital if it was a Bruins playoff beard...hahahha). He hadn't
started losing his hair yet, but he figured he just wanted to get it
over with. I went out and bought him some beanies to keep his head
warm and comfy.
Today he had a check-in at Dana Farber, where we got the latest on
what's going on. Right now Scotty's white blood cells are extremely
low, which is expected at this phase after chemo. This is a very
critical time as any sudden change or fever could mean something
serious, but we were told that this will get better as the days go
on. He was slightly dehydrated and he is also very low on phosphorus
so he has been given a supplement to address that. Ultimately he'll
start feeling better and stronger right up until his next chemo
treatment and then he'll go through the process all over again. The
nurse practitioner he saw was awesome. She took her time, answered all
our questions and honestly was the most optimistic out of any of the
medical staff I've talked to so far. She gave me the warm and fuzzy
feelings that I've been longing to feel since Scotty's health took a
turn for the worse. Yes, he is in pretty bad condition... but it is
CURABLE. And for someone with Scott's strength and determination, it
is inevitable that he will win this fight against cancer!
Scotty had a visit with Billy, one of his oldest and dearest friends,
for a good part of yesterday and I tell ya, I haven't seen him light
up like that for a while. His friends and family mean a lot to him
and something I've noticed is that he's starting to feel lonely. He's
got me and the dogs... but come on, we're only so entertaining and for
so long! In the next couple days when his body starts getting
stronger, he could really use some visits from his support system. He
loves getting cards and emails... that has seriously been huge when
he's started to feel down, but nothing can beat real life interaction,
especially as he's wrapping his head around why this is happening to
him. Happy and positive visits only and leave the germs at home!!! :)
Shoot me an email or text myself or Scotty if you want to come by! (my
cell [removed])
Lastly, Scotty's next 5 days of chemo start on Friday, July 8th. I'm
told I'm to call at 9am that morning to find out what time to bring
him in... so I'll keep you posted as I know! We don't know what side
effects the next round will bring, but let's all pray (and think
positively) that he will do as well as he did with the first.
Thanks for all your love and support. And remember to live for today
because you just don't know what tomorrow might bring!
Peace & love, Jax
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