Wednesday, June 29, 2011

Email from June 23, 2011

Hey everyone, I'm going to make this quick b/c I've got a lot to do on
very little energy... because... Scotty is coming home tomorrow!

Scotty has amazingly and gracefully finished 5 days of aggressive
chemo (ending last night). They were going to let him go home today
but due to some complications with a blood clot he is experiencing
(and has been being treated for), they are going to keep him just to
prepare him for his discharge. He has a blood clot in his thigh area
due to some enlarged lymph nodes and they are also pressing on his
urine lines (for lack of better wording). This is causing one kidney
to work harder to compensate for the one that is not draining
correctly. His tests show he is not having kidney failure, they just
want to make sure that both can do what they need to do until the
cancer cells and/or blood clot start shrinking/breaking apart. They
were going to stick a tube out his kidney to drain it and send him
home with it so it was a blessing to learn this morning they did not
feel they needed to do so (especially since it would just be another
opportunity for infection). One of my jobs as Scotty's caretaker will
be giving him his daily "fragment" shot in his stomach which is to
treat the blood clot. I got to practice today on an orange with
saline injections and I get to make my "nurse jackie" debut tomorrow
morning. :)

Tomorrow before he leaves he will be going to Dana Farber to get an
"immunity shot" The next couple of weeks his immune system will be at
an all time low so this will help him with his blood cells. Because
of that, if you want to visit, we ask if you are sick, or have been
around anyone who is sick to think about waiting to come by. We also
don't know how he's going to feel day to day so that will also dictate
visits. He misses you and is going to need all of your love and
support as he continues this journey of taking back his body. He has
ups and downs emotionally and that is where some of you are going to
have to help me remind him how amazing and loved he is so he will
continue to fight as awesomely as he has.

He will be home for 2 weeks before he goes back to Boston for another
5 day chemo stint. We're not sure if that process will happen 3 or 4
times before they rescan him. Please keep your prayers coming, you
have all been so amazing with your cards, texts, emails and calls. We
are so blessed to have such amazing friends and family in our lives
and we wouldn't be able to get through this without you. Scott is
doing remarkably well for what he just went through and I know it has
to do with all the love and support and prayers. I think Scott is
being prayed for by more people in this world than any of us can
fathom based on the amount of prayer chains people have added him/us
to. Thank you!

For those who keep asking if they can help in some way, don't worry,
we'll find stuff as the days go on. I'm sure the first comment out of
his mouth tomorrow will be about how long the grass is already. :)
Asking for help has never been my strong suit, but this experience is
changing and growing me in so many different ways. I'll FIO.

So much for quick huh? I guess I'm just really happy to report good
news and can't wait for my Scotty to come home!!! He has so much more
to go through but I am on cloud 9 after leaving him this morning
looking so good after experiencing 5 straight days of poison being
injected into his body. He's so strong, he is such a fighter... he is
a survivor!

Love to you all and can't say it enough but thank you, thank you,
thank you!

Peace, Jacqueline

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