Hi everyone!
I can't believe how fast time goes by between updates! I apologize for not updating while Scotty was in the hospital (even though I promised!!!!), but I am happy to say that he is home after Round 2 of Chemo. Thankfully it was a a rather uneventful 5 days, but yielded some very positive news! One of the tests that were done were at the start of this round of treatment was to check his Tumor Markers. On Monday, Scotty got the results showing both markers were reduced by 90% (110,000 to 9500 and 40 down to 4)! This is awesome news and Dr. Pomerantz said that this is where he wanted/expected him to be at this point.
Scotty had requested to be on the same floor as when he had his first round of treatment and he was very lucky they were able to do so for him. They were also able to order him his air mattress to keep him comfortable. He had AWESOME nurses, most of which he was familiar with and he was in good spirits for pretty much the whole 5 days. Towards the end he started feeling the nausea and some of the side effects of the poison being pumped into his body. He had a rough ride home from the hospital last night with his brother and vomited a few times. He got home and wolfed down some of his beef burrito that he was craving ALL DAY LONG!!! (I'm telling you, he is off the rocker with his cravings). He is currently upstairs in his room, surrounded by all of the cards and other stuff you all have sent, as we wait out the next few days as his body starts to crash. His appetite is off/on and he comes up with sudden cravings (ie: burritos, gummy bears) His biggest challenge is to drink 4 liters of fluid/day. They are really pushing gatorade and stuff with electrolytes, which right now is actually better for him than water. Tomorrow he we are going to experience the Londonderry Dana Farber Center for the first time as he has to get his "immunity shot." We were also told we could get his blood tests done locally next week so that saves us a trip to Boston for his follow-up. If all goes well, we won't see Boston for another 2 weeks when he goes for his 3rd round of Chemo. At that point they will hopefully do scans that will show the shrinkage of the tumors. Everyone please pray that Round 3 will be all he'll have to endure and won't have to return for a 4th!
Thank you to everyone for your continuous generosity and support. Scotty never seemed to have cared about mail before, but lately he has been asking me if there is/was any. I think we both look forward to it every day because when a card comes and someone says they're thinking of him (or us), it totally brightens our day. And then it goes on the wall. I have put MANY tacks into our bedroom walls, but it's all worth it to see him surrounded by all your thoughts and love. The other "stuff" you guys have been doing and sending has been amazing... just the thought puts me in (happy) tears. And the visits have been great. Coming back to the hospital at night to hear of his visits always made me so happy. I look forward to all of his upcoming home visits too. (Remember - no germs allowed)! And for those of you going above and beyond... I am forever grateful... more than you'll ever know!
Some of you have reached out for Super Scotty wristbands, so thank you!!!! I got one returned in the mail today saying it was for a .20 non-machinable surcharge. I think b/c they're not flat they charge more? So if you could throw 2 stamps (or the correct postage .64) that would be terrific. For anyone who sent one with just a stamp, please don't do anything, I've got you covered. :) If you don't want to deal with the postage, than come on over and pick them up in person! We have got plenty!
I hope you are all doing well and enjoying the beautiful weather. Please remember to be grateful everyday for what you have in your life, including your health. If you wake up one morning and just don't have it in you, then think of Scotty and do it for him!
Peace, love & happiness,
Jax
P.S.
Please support Scotty, Lance Armstrong and millions of others by signing the petition below. If they get 100,000 signatures by September, the petition will be hand delivered to the World Leaders at the UN Summit in NYC. Please help fight cancer!
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